Monday, December 23, 2013

As an asylum seeker in USA and a person living with HIV/Aids in Worcester MA, this is where I get support and care!

December 2013

...But the Night was so Delightful
 
      While the snowstorm raged outside, revelers dined, danced and bid at the silent auction at the inaugural Winter Wonderland Ball, held Dec. 14 at the DCU Center and hosted by APW and Pathways for Change.
     "Wow! I was happily surprised to see so many people attend given the weather challenges; it was a great night!"
      "This event was more fun for us because it was more community focused and personal - thank you! We had a great time and can't wait for the Masquerade Ball!"
     APW and Pathways would like to thank all the generous sponsors (see our website at www.aidsprojectworcester.org for a full list) including those who gave such exciting items to the silent auction.
     Plans are underway by both agencies to collaborate again -this time on a Masquerade Ball to be held in October or November, 2014.
     Details will follow.
 
 
 
Toy Store Success

     'Tis the season for love and giving - and supporters came through again, donating almost 1,000 toys and articles of clothing that will bring smiles to 372 children associated with APW.
     On Wednesday, Dec. 18, consumers who are parents "shopped" for their children at our "Toy Store," followed by Thursday, Dec. 19, when grandparents "shopped" for their grandchildren.
     In many cases, these are the only toys children will receive during the holidays.
     And with donated wrapping paper, ribbon and bows, parents and grandparents were able to personalize each gift.
     Thank you to each and every donor.  
           
Just some of the toys that will make a child smile
Just some of the toys donated by generous supporters.
Annual Holiday Party
 
      Thank you to so many volunteers who helped make APW's December 6th party a success. A visit from Mr. and Mrs. Claus, live music, delicious food - it was another celebration of the season enjoyed by consumers, staff, board members and friends of the agency.
     A special shout out to St. Richards Church in Sterling whose congregation comes by every year, putting their faith into action and spreading the season of giving. 
 
    
Together we make a difference
     AIDS Project Worcester gives hope to those who are HIV positive with the message that despite a life-changing diagnosis, life can be full and rewarding. Today, we serve more than 500 people in Central Mass. who are HIV positive and their 1,500 affected family members.
     Will you help? 
     Please make an online donation by going here.
     Your dollars will help us give support to so many who are enduring so much. In the spirit of the season - thank you.
 
If you would like to learn more about the agency and what we do, please check out our website:  
  
Follow us on Twitter Like us on Facebook 
Upcoming Events

Rev. Martin Luther King Jr. Community Breakfast
When: Monday, January 20
Where: Quinsigamond Community College
670 West Boylston St., Worcester

  
Black AIDS Awareness Day
When:  Friday, Feb 7, 6-8 p.m.
Where: AME Zion Baptist Church
55 IIllinois St., Worcester
APW observes this annual event to bring awareness about the impact of HIV/AIDS in the black community. Guest speaker, delicious food, live music and special guest (tentative) State Representative Gloria Fox.
Stay tuned for more details! 

  
Rainbow Lunch Club 
When: Wed. Jan 8, noon
Where: Unitarian Universalist Church of Worcester  
90 Holden St. Worcester
The Rainbow Lunch Club offers LGBT seniors (60+) a nutritious meal and an opportunity to socialize. 
To make a reservation, call Joan at  508.756.1545 ext. 404, or email wlen@eswa.org  



Consumer Advisory Board
When: Second Friday of every month, 1-2 pm
Where: APW, 85 Green St.
Composed of interested consumers, the CAB meets to discuss ways to make a difference at APW. If you are a consumer at APW and would like to learn more, please contact CAB liaison Julialene Johnson at 508.755.3773, ext. 19 or email her at johnson@aidsprojectworcester.org

Transportation Day
When: Tues Jan 7, 9 am-12 pm
Where: APW, 85 Green St
For consumers to receive transportation passes to assist with medical transportation needs. 

 
New Horizons
When: Every Sunday, 2-4 pm
Where: APW, 85 Green St.
A transgender support group held here at APW. For questions, call Lauren Gartenlaub at 508-755-3773, ext. 38 or email her at 
 
 
 
Empowerment Group
When: Every Wednesday, 1-3 pm
Where: APW, 85 Green St. 
Mindy Montanez facilitates this weekly meeting for those living with HIV/AIDS. While lunch is enjoyed, folks might listen to a provider talk about medication adherence or another pertinent subject. Other times, a doctor from Family Health Center will do a Q & A. And sometimes, it's just an opportunity for people to have lunch, be together and talk about what is going on in their lives. For more information, call Mindy at  

Tuesday, December 17, 2013

Truvada; the wonder drug

HEALTHDECEMBER 15, 2013

There's a Wonder Drug That Prevents HIV Infection. Why Haven't You Heard of It?

Two weeks ago, when the Centers for Disease Control and Prevention issued itsMortality and Morbidity Weekly report, many outlets were quick to jump on one specific statistic: that unprotected anal sex among men is up nearly 20 percent from 2005 to 2011. In the New York Times, Donald McNeil said that the statistic was “spurring HIV fears” and was “heightening concerns among health officials worldwide.” In Slate, Mark Joseph Stern argued that the “case against barebacking with a non-monogamous partner remains as strong as ever,” and cited monogamy as "clearly the gold standard of sexual health.” And in The New Yorker, Michael Specter wrote,  “If unprotected anal intercourse is rising among gay men, the rates of HIV infection will surely follow.” He concluded the piece by quoting Larry Kramer’s landmark 1983 New York Native article, “1112 and Counting”: “Our continued existence depends on just how angry you can get… Unless we fight for our lives we shall die.”
Reading these and other reactions to the report, one has to wonder if the mainstream media has developed an almost Pavlovian response to gay men's sexual habits. Certainly a rise in unprotected sex among men is cause for concern. But as the face of HIV and the AIDS epidemic changes, our responses to these statistics need to change as well, demonstrating the nuance and complexity necessary to reflect the current landscape. The conclusions above read much like they would have two decades ago: HIV infections are certain to rise. Young gay men don't get it, or don't care. Monogamy is the solution. People need to be scared into using condoms again. 
And yet, not a single one of those articles mentions another aspect of the CDC report: PrEP, or Pre-Exposure Prophylaxis, arguably the biggest breakthrough in HIV prevention medication to come out in the last two years. Truvada, the first PrEP drug, was approved by the FDA last summer. When taken daily, it can prevent transmission of HIV 99 percent of the time if taken every day. Even if taken only four times a week, its effectiveness remains as high as 96 percent. One would think that a statistic like that would be widely reported and celebrated, and yet there are few people outside of the LGBT community who have even heard of PrEP.
It's easy to understand why PrEP hasn't been heavily publicized by certain institutions involved in HIV prevention. Thirty years into the epidemic, the CDC still says oral sex can result in the transmission of HIV, despite enough evidence showing that the risk is “extremely low.” The agencies play it safe, and PrEP opens them to another kind of risk. There is also the issue of adherence: People are not always good at sticking to a daily regimen of pills, and doctors worry that using Truvada on occasion, rather than as directed, might lead to the emergence of drug resistant strains.
But the lack of reporting about PrEP may stem from something else altogether: a lingering controversy about its use within the gay community itself, and how PrEP has contributed to a growing generational divide between old-guard condom true-believers, many of whom survived the epidemic of the '80s and '90s, and a new generation of HIV activists for whom condom use is seen as just one tool in a growing arsenal of prevention methods.
The case for the use of condoms is clear. PrEP doesn't protect against any of the numerous (and more easily transmitted) STIs. Condoms are affordable, readily available in drugstores, often freely distributed at gay bars and social centers. “It is fashionable in some quarters to attack condom education, but it cannot be sufficiently emphasized that most gay men have got through the epidemic without getting infected because they have indeed been diligent in their use,” Simon Watney, and AIDS activist since 1983, writes at CNN. “Whatever else may be in the pipeline by way of chemical prophylaxis, it remains every bit as important today as it was 30 years ago...that any gay man getting fucked who is not 100% confident about his partner's HIV status should insist on their using a condom.” 
Despite these ostensibly sensible pleas, condom usage has slipped by 20 percent, according to the CDC report, likely reflecting shifting perspectives about how useful and necessary they are. This is particularly true among younger gay men living with HIV, several of whom, like bloggers Aaron Laxton and Josh Kruger, have spoken skeptically about an over-reliance on condom messaging. Laxton wrote in The Advocate that it's "time to wake up and recognize that beating people, let alone addicts, over the head with the “condom” message isn’t cutting it,” while Kruger argues that if condom campaigns "were effective, then I would not be writing this right now. Rather, I would have been protected against HIV infection. We must recognize that condom campaigns have failed miserably to be relevant to the world in 2013. 
To some, the suggestion that we downplay condom usage reads like heresy, bordering on willful ignorance. It's very often tied up with the idea that young people are misinformed or cavalier about the dangers of HIV, partly because many of them don't know anyone who has died of AIDS. (The Times story cites a hypothesis by two CDC doctors that many young men “never having known anyone dying of AIDS and therefore not fearing it.”) Yet are young people necessarily making risky choices? Isn't it more likely that, in the face of myriad conflicting messages about what it means to contract HIV, they are just making decisions that better reflect the reality of their lives?

Not all of the older guard are taking the younger generation to task. Many of them have spoken out against what they perceive as the good-intentioned but often strident finger-wagging of their fellow AIDS survivors.
“The notion that young men do not fear HIV...is a myth that needs to be dispelled. It undermines the lives and struggles of a new generation of gay men trying to make their places in the world,” writes Perry Halkitis, professor and author of the book The AIDS Generation: Stories of Survival and Resilience. “The truth is that HIV is no longer a death sentence, and to expect a new generation of gay men to perceive it in that manner is unreasonable, unwarranted and unrealistic.” Longtime activist and author of My Fabulous Disease, Mark S. King, seems to agree: “Young gay men are more aware of HIV than my generation ever was. They simply relate to it differently.” 
How are younger gay men relating to HIV differently? By engaging in a wide range of prevention practices including sero-sorting (the practice of choosing partners based on HIV status), sero-positioning (choosing sexual position based on same), monogamy, frequent testing, choosing partners with undetectable/non-transmissible viral loads (amount of the virus in the bloodstream), among others. Meanwhile, the mixed messages that younger gay men receive about HIV is complicating their decision making. “This has been a prevention dilemma since the mid '90s,” Ed Wolf, an AIDS activist and educator featured in the acclaimed documentary We Were Here,told me. “On the one hand, we want to tell someone who finds out they're positive today, you're going to be fine...you're not going to die of AIDS... On the other hand, we want to tell uninfected people, don't get this terrible disease.”
Finding the balance between those messages has become the central struggle of HIV prevention, and may be why PrEP remains bitterly controversial. Many in the gay community still perceive it as a license for promiscuity.
David Evans, the director of research advocacy at Project Inform, in October wrote in The Huffington Post that the gay community couldn't afford to lag in embracing PrEP—and was met with a fair amount of vitriol. "I've seen so much of that in the community," he told me. "We demonize people who are having a really hard time making choices not to use condoms.” Doctors, too, are raising moralistic objections, according to Evans: “We get about 2 calls or emails a week from someone trying to get PrEP and are unsuccessful…. The problem has been, every single time, that the provider themselves often either didn't know about PrEP or had very negative opinions about it.” 
Many people within and outside the gay community cannot fathom why gay men would have unprotected anal sex, but it's all a matter of perspective. All of us take calculated risks every day, as Ed Wolf points out. “Driving a car is a very deadly serious issue, but because driving a car is so valued in our society, no one is going to say not to do it," he said. "Instead they've come up with a whole cafeteria menu for how to reduce your risk in the car, and this is all we are saying: for some people having ... anal sex is as important to them as is the car that you are driving. And so we need to have a wide menu of options for those people as well. But that behavior is not valued.”
PrEP, then, is a sort of seatbelt for gay men, and it's no more a license for promiscuity than a seatbelt is a license for speed: for some users it may be, but not for most. The aforementioned reports notwithstanding, the fact that PrEP remains little known and poorly understood cannot be blamed on the media entirely. The culture at large, including many gay survivors of the '80s and '90s, need to rethink their biases and assumptions—that, yes, it's possible now to have safe, unprotected gay sex.
The existence of this debate, though, represents staggering progress. How lucky we are to be facing these particular concerns, considering where we were only twenty years ago. The fact that we now have PrEP, and antiretroviral medications making the virus non-transmissible, and that people in the U.S. are mostly living with AIDS rather than dying from it, is something we didn't dare to imagine back then. “Some day we're going to look back at this, and the epidemiologists and the social scientists are going to go, isn't this interesting, a virus came that was transmissible from person to person, and the big global response was to keep these people alive, which is so compassionate,” said Wolf. “We didn't want people with HIV to die, so we created systems to support them and keep them alive, but then it guarantees an ongoing viral pool, because it kept the virus alive as well.”
Eric Sasson writes Ctrl-Alt, a column on alternative culture for the Wall Street Journal. He is the author of Margins of Tolerance. You can follow him on Twitter @idazlei or visit his website here.

Monday, December 16, 2013

Affordable Care will help!

How the Affordable Care Act of 2010 Will Help Low- and Moderate-Income Families

July 13, 2010
Tags: health reform health insurance health insurance premiums
At the heart of the Patient Protection and Affordable Care Act of 2010 (ACA)—which will provide health insurance coverage to some 32 million uninsured people over the next 10 years—is a recognition of the needs of low- and moderate-income people.1
People in these lower-income groups have been the most affected by the nation's inability to enact comprehensive health reform until this year. While most people in the U.S. have health insurance through an employer, the chances of having job-based benefits decline dramatically with income. Nearly two-thirds of the 45.7 million uninsured people under age 65 have incomes that are less than 200 percent of poverty, or about $44,100 per year for a family of four (Exhibit). In addition, of the estimated 25 million underinsured adults—those who cannot afford their out-of-pocket medical costs despite having insurance—more than half have incomes under 200 percent of poverty.2
These statistics are about to change: the ACA will have significant effects on the coverage of families with low and moderate incomes (under $88,000 a year). Beginning in 2014, many of these families will gain access to affordable, comprehensive coverage through a substantial expansion in Medicaid eligibility and the provision of subsidized private insurance.
Affordable Care ActMedicaid expansion. In 2014, the ACA expands Medicaid eligibility for all legal residents to 133 percent of the federal poverty level (about $14,404 for a single adult or $29,327 for a family of four). This is a major change in Medicaid's coverage of adults. Although several states have expanded eligibility to include parents of dependent children, in most states adults' income eligibility is well below the federal poverty level. And childless adults are not currently eligible for Medicaid, regardless of their income, in most states. Because almost half of the uninsured, or 21 million people, live in households with incomes under 133 percent of poverty, the Medicaid expansion will potentially do more to increase the number of people with health insurance than any other provision in the law (Exhibit).3
State exchanges and subsidized coverage. The ACA also establishes state health insurance exchanges for small employers and individuals without employer or public coverage. People buying insurance on their own will have far better information about what health plans cover than they do today. Through the exchange, employers and individuals will be able to choose among plans that have a federally determined "essential benefit package" comparable to employer-sponsored plans, with four different levels of cost sharing: bronze (covering an average of 60 percent of an enrollee's medical costs), silver (70 percent of medical costs), gold (80 percent of medical costs), and platinum (90 percent of medical costs). For all plans, out-of-pocket costs will be limited to $5,950 (single policies) and $11,900 (family policies).
For the first time, people buying coverage on their own will have access to a premium subsidy. Premium credits will be tied to the silver plan sold through the exchange and will cap premium contributions for individuals and families to about 3 percent of income at just over 133 percent of poverty ($14,404 for a single adult or $29,327 for a family of four). The cap will gradually increase to 9.5 percent at 300 percent to 400 percent of poverty ($43,320 for a single person and $88,200 for a family of four) (Exhibit). This subsidized private coverage has the potential to provide health insurance to up to 44 percent of those currently uninsured, or 20 million people. (Exhibit 1).4
People with low and moderate incomes will also benefit from cost-sharing credits that effectively reduce out-of-pocket costs under the silver plan from 30 percent of total medical costs to 6 percent for people with incomes up to 150 percent of poverty. Costs will drop to 13 percent of total costs for those with incomes up to 200 percent of poverty and to 27 percent for incomes up to 250 percent of poverty (Exhibit 1). In addition, out-of-pocket expenses will be capped for people earning between 100 percent and 400 percent of poverty from $1,983 for individuals and $3,967 for families, up to $3,967 for individuals and $7,933 for families.
In addition, new insurance regulations will prohibit carriers from denying coverage or charging premiums on the basis of health, placing limits on what an insurer pays annually or over a lifetime, and rescinding insurance when someone becomes ill.
The essential benefit package, out-of-pocket limits and cost-sharing subsidies, and the new insurance market regulations all will help reduce the number of people who are underinsured.
Individual mandate. Some may be concerned about the impact on low-income people of the requirement that all U.S. citizens and legal residents maintain health coverage or pay a penalty, which is set to begin in 2014. However, those who cannot find a health plan for which their contribution is less than 8 percent of their income are exempt from the penalty, as are those with incomes below the tax-filing threshold ($9,350 for an individual and $18,700 for a family).
Looking Forward 
The Congressional Budget Office estimates that about 23 million people will still lack health insurance in 2019, one-third of whom will be undocumented residents who are not eligible for coverage under the law. The remaining 15 million uninsured people are likely to be those eligible for but not enrolled in Medicaid and those exempt from the penalty or who chose to pay the penalty over enrolling. In order to achieve near-universal coverage under the ACA, it will be necessary to ensure barrier-free enrollment, seamless transitions between coverage sources, and the affordability and comprehensiveness of benefits over time.
The original version of this post appeared on spotlightonpoverty.org .

1Congressional Budget Office, Letter to the Honorable Nancy Pelosi, March 20, 2010.
2C . Schoen, S.R. Collins, J.L. Kriss, M.M. Doty, "How Many are Underinsured? Trends Among U.S. Adults, 2003 and 2007," Health Affairs Web Exclusive (June 10, 2008): w298–w309.
3Analysis of the 2009 Current Population Survey by Nicholas Tilipman and Bhaven Sampat of Columbia University.
4Ibid.